Saturday, September 16, 2006
| You Are Sunshine |
Soothing and calm
You are often held up by others as the ideal
But too much of you, and they'll get burned
You are best known for: your warmth
Your dominant state: connecting |
posted by Trish_momof4 @
12:35 PM
Friday, September 15, 2006
I got the pictures today to start Nova's scrapbook for my best friend Erin and it was very hard to look at the pics. I really want to create something that she will love and I am so afraid I'm going to let her down. I have never made a scrapbook before and I really don't want to screw this up. The heart walk is tomorrow morning and I am sure she is all wound up because this has been her main focus for so long I know she is going to have a great time and after it is all over we plan on getting things together for next year to be a better year for team nova! FYI they will still be taking donations for this years walk for a few weeks after the walk so if you want to make a donation click the link on the side of my page. Wish me luck in making the best damn scrapbook ever to honor Nova's memory.
posted by Trish_momof4 @
10:55 PM
I donated a blanket to my friend Erin to raffle off to raise money for the CHD heart walk in Sept. If you would like to you can
read the story and enter the raffle for the blanket you can also check back to see how many people have entered and what the pot is up to.
The winner of Ryan's blanket was Joyce and she is so sweet that after she won the blanket she said she wanted me to keep it because she knows how much it must mean to me so Thank you Joyce!
For anyone that visits here and wants to make a donation to team Nova for this years heart walk the time is running out if you still want to make a donation click here.
posted by Trish_momof4 @
12:00 AM
Wednesday, September 13, 2006
My mom and I had a long talk the other day about her will (her subject not mine) she was telling me yet again how it will be set up and what not and I finally told her how the grandkids felt about how almost everything that ment anything to her is going to one specific grand kid and their feelings were hurt. She acted like she just didn't understand so I told her that years ago when she "gave Kayla a choice" about getting this very old doll that was mom's when she was a girl or mom getting Kayla a new doll Kayla chose the new doll because that is what she thought mom wanted her to choose but that Kayla really still wanted the old doll. Well mom not only listened but she heard me so this weekend mom brought Kayla the doll and Kayla has been on cloud nine about it ever since. Now mom wants me to try to find out what the other grandkids would like to have that would mean something to them.This may be quite hard but I plan to try. Here are some pics of Kayla with the doll. BTW this doll is 47 years old
posted by Trish_momof4 @
10:38 AM
Last night Ryan decided he wanted to wear Shelby's skort ON HIS HEAD!!
posted by Trish_momof4 @
10:14 AM
Tuesday, September 12, 2006
The Secret To Shelby Grace,
I will never forget the morning the neurologist came into the NICU and told me “Shelby has suffered a lack of oxygen to the brain and has hypoxic eschmic encephalopothy (HIE.) I wasn’t aware I was holding my breath with tears streaming down my face waiting for him to explain. In that moment before he spoke again I saw flashes of a beautiful baby girl doing all her firsts, babbling, rolling, sitting, crawling, steps, then I saw her going to kindergarten, on her first date, getting married, having her first baby and then I realized it wasn’t my life flashing before my eyes it was hers!
The doctor went on to say that she would probably have cerebral palsy and a seizure disorder and never mature past where she is right now. Then he said something that changed my life and I choose to live by “Take her home and love her.”
When she came home I did just that I loved her unconditionally and poured my entire self into helping her and today she can roll over, talk (even if only those closest to her can understand what she says) She has started kindergarten. Even though she has many obstacles like not being able to walk or use the potty or communicate clearly she is one of the happiest little girls I have ever known. She loves her family and friends and she has a smile that lights up any room.
So my advice is to take your child and love them, that is the true miracle.
posted by Trish_momof4 @
4:25 PM
Monday, September 11, 2006
I can tell you that I was sitting on the floor of my living room holding Shelby who was almost 1 and still more like an infant because of her cerebral palsy. I was watching the TV in horror clinging all the tighter to my baby wishing my other kids weren't in school (and yes I went and picked them up early) I cried while watching the live feeds and I have to admit I got to a point where I had to quit watching because I just couldn't Handel all the emotions coming from everyone in the house we were all so tense and were kind of waiting for the other shoe to drop.
Today I can still remember those thoughts and feelings and I have to admit that it was really hard to take Shelby to school today when every fiber of my being was screaming to keep her home and hold her close like I did that day (not that I am worried something will happen to her) it is just really weird taking her to be cared for by people I barely know just because they are teachers.
Kayla and Justin even said it was weird going to school today but I just couldn't justify keeping them home because of this day of remembrance they need to be with their friends. I really hope today goes the same as the other anniversary dates have gone and we don't have to morn this day for new reasons.
posted by Trish_momof4 @
8:04 AM
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