We are on day 2 of the Keppra and so far so good she has not had any really bad side effects. She does get really sleepy about half an hour after I give it to her but that is to be expected.
Rod are not on the best of terms right now. I have been getting active in a mom's group and he is not very happy about it. I guess he thinks he and the kids are all I should need in my life and just can't understand why I would need friends. He had been very mad at me about it and is jealous of the time that I spend with my friends. I wish he would understand that I can have a family and friends and it actually makes me a better person. I love him I really do but he is just going to have to learn that I am not going to give up either my family or my friends I like having them all in my life.
The MRI was pretty much what we expected she has damage due to the loss of oxygen she had at birth and it seems that there has been no new trauma to the brain witch is good. The bad news she has damage on both the left and right and he said that makes the possibility of a grand-mal more likely. We have gotten the diastat for emergency.
The ambulatory EEG did show some seizures while Shelby was sleeping. He started her on Keppra 100mg/ml and I have to give her one ML at night before bed for the first week, then 1ml at night and 1ml in the morning for the second week then 2mls at night and 2mls in the morning and we will be at the dose they want her on. So tonight at 6:30 I gave her 1ml and by 7:30 she was falling asleep in her chair so I got her ready for bed and when I went in a few minutes ago she was snoring. I hate that I am having to start her on Meds I am so scared that I will forget to give it to her I am just so bad at remembering meds. I have made a chart so I can keep up with the dosing schedule and am going to set an alarm to try to help me remember to give it to her until I get used to the routine. I hope she doesn't have any bad side effects. I guess I'm just feeling a bit sad that she is going through yet another bump in the road that is her life. My heart aches for my little girl.
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